Did you know that every 18 minutes a brain aneurysm ruptures? Find out how the Brain Aneurysm Foundation is working to provide awareness, support, research funding, and education to reduce the incidence of brain aneurysms in this month’s Partner Spotlight!
Q: When and why was The Brain Aneurysm Foundation founded?
A: Now celebrating more than 20 years of service and led by Executive Director Christine Buckley, the Brain Aneurysm Foundation was established in 1994 at Massachusetts General Hospital in Boston, Massachusetts. The Foundation developed from a close relationship between patients and healthcare professionals who identified the need for comprehensive information and support for brain aneurysm patients, their families, and the medical community. The Brain Aneurysm Foundation is the nation’s premier nonprofit organization solely dedicated to providing critical awareness, education, support, and research funding to reduce the incidence of brain aneurysms.
Q: What is one thing that everyone should know about brain aneurysms?
A: Brain aneurysms, which affect 1 in 50 people leading to an estimated 30,000 ruptures annually, are a silent killer, providing little or no warning. This disease strikes indiscriminately, but communities of color have a higher risk of rupture often causing death or cognitive disability. In general, women are at a greater risk to form a brain aneurysm than men.
Q: What progress have you seen in the field of research on brain aneurysms since founding?
A: Since the inception of the Foundation there has been great strides in research. Not only have the devices changed quite a bit, but also new ones such as the Pipeline Stent have come along. There has also been progress in understanding the biology of aneurysms, better understanding of and ways to control vasospasms, and a keener insight into the hemodynamics of brain aneurysms with computational fluid dynamics. These are just a few examples of the outcomes of research and we look forward to continued success of current and future research.
Q: What are you most excited about in the coming year for the Brain Aneurysm Foundation?
A: We’re excited about new partnerships like RapidSOS that offer new and unique benefits to our community; we’re excited about our new campaign launching in January that will help raise awareness of brain aneurysms across the country; and we’re really excited to gather even more supporters for our lobby day in DC this year to ask Congress to increase funding for brain aneurysm research – we rely on our partners to help us raise awareness and fund research!
Q: How do you see RapidSOS technology helping the Brain Aneurysm Foundation’s mission?
A: One of the primary messages of the campaign we’re launching in 2017 is that 1 in 50people has a brain aneurysm – so it’s more prevalent than most people know about. Every 18 minutes a brain aneurysm ruptures, and our mission includes raising awareness of the signs and symptoms. People with a ruptured brain aneurysm need to get emergency medical help immediately – every minute counts with a ruptured aneurysm. RapidSOS technology provides a reliable and immediate way to contact emergency responders with your exact location – a feature that isn’t a guarantee when you dial 9-1-1 on your cell phone. It’s a great offering for our community as we launch our new campaign and ramp up our awareness this year!
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